Driving policy change to improve outcomes for people affected by retinal conditions
Retina International works to influence policies, systems, and decisions that affect the lives of people living with retinal conditions.
Evidence-based advocacy and collaboration
RI Campaigns
Patient Voices – Deciding Our Future
Patient Voices: Deciding Our Futures is Retina International’s initiative focused on ensuring that people affected by retinal conditions remain at the centre of decisions about research, healthcare, innovation, and access to treatments.
Act4RED
Act4RED is a joint initiative of Retina International, ERN-EYE, the Foundation Fighting Blindness, and the Ocular Diseases Forum, bringing together patients, clinicians, and researchers to improve diagnosis, care, and innovation for people living with Rare Eye Disease (RED).
Retina International Age-related Macular Degeneration (AMD) Advocacy Task Force
This RI task force aimed to develop consensus on policy priorities for AMD across three countries, identifying opportunities for collaboration and action at local, regional and global levels. Its deliverable was a set of policy recommendations for people living with AMD.
Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
World Retina Day
World Retina Day (the last Sunday in September) shines a spotlight on the importance of retinal health and awareness of retinal disease.
Retina & Vision-Related Awareness Days
Key retina and vision-related awareness dates to raise public understanding, amplify patient voices, and keep the needs and priorities of the retina community at the forefront of research, healthcare, and policy action.
Building healthcare systems that recognise retinal health needs
Ensuring research reflects patient priorities
Promoting equitable access to innovation
Ensuring healthcare decisions reflect lived experience
Bringing the global retinal community together to create change
Retina International’s campaigns bring together people affected by retinal conditions, patient organisations, researchers, clinicians, partners, and supporters to raise awareness, amplify patient voices, and drive meaningful action.
Through our campaigns, we address the issues that matter most to the retinal community — from increasing awareness and understanding of retinal conditions to promoting patient involvement, advancing advocacy priorities, and supporting progress in research and healthcare.
Creating opportunities for communities around the world
Each campaign is built on collaboration and shared purpose, creating opportunities for communities around the world to participate, share experiences, and contribute to a future where people affected by retinal conditions have access to the information, care, support, and innovations they need.
Together, we are turning awareness into action and ensuring that the voices of people affected by retinal conditions remain at the centre of change
Together, we are shaping the future of retinal health.
Whether you are a person living with a retinal condition, a family member, researcher, clinician, policymaker, industry partner, or patient organisation, Retina International provides opportunities to connect, collaborate, and create lasting impact.
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