Advancing Research. Amplifying Patient Voices. Accelerating Change.
Collaboration is central to Retina International’s mission to improve the lives of people affected by retinal conditions.
Through our partnerships, we help advance research and innovation, raise awareness of retinal conditions, promote meaningful patient involvement and advocate for equitable access to treatments and care.

Our Stakeholders
We work with a diverse network of stakeholders, including patient organisations, researchers, healthcare professionals, EU-funded research consortia, regulatory bodies, pharmaceutical and biotechnology companies, private sector partners and philanthropic supporters.
Our Partnership Network
Funding Partners
Retina International’s work is supported by a diverse funding consortium, including pharmaceutical and biotechnology companies, private sector organisations, grants and philanthropic contributions. This support helps us deliver programmes, develop educational resources and advance our research and advocacy priorities.
We value collaboration that is aligned with our mission and guided by transparency, integrity and the interests of people affected by retinal conditions.
Networks and Memberships
Retina International participates in European networks and patient advocacy organisations that bring stakeholders together to improve healthcare, research and the lives of people affected by rare and chronic conditions.
Our network memberships include:
- ERN-EYE: The European Reference Network dedicated to rare eye diseases, supporting collaboration and the sharing of specialist knowledge across Europe.
- EURORDIS – Rare Diseases Europe: A patient-led alliance representing people living with rare diseases across Europe and advocating for better access to diagnosis, treatment, care and research.
- European Patients’ Forum (EPF): An organisation representing the collective interests of patients and promoting meaningful patient involvement in European health policy.
Collaborating Organisations
We work with like-minded organisations across the rare disease, patient advocacy, research and healthcare communities. By sharing knowledge, experience and resources, we strengthen the collective voice of patients, support collaboration and help drive positive change for the retinal community.
Why Partner With RI?
Retina International (RI) is an established, trusted global network representing people living with inherited retinal diseases (IRDs) and their families. With a strong track record in patient-led research, international collaboration and advocacy, RI bridges the gap between the patient community, researchers, industry and policymakers. Our evidence-based approach, commitment to meaningful patient involvement and global reach make us a trusted partner in advancing research, shaping policy and driving innovation towards better outcomes for people living with retinal diseases.

The Value of Partnership
A Trusted Global Network
Connect with a respected international alliance of patient-led organisations, bringing together expertise and perspectives from across the retinal community.
Meaningful Patient Involvement
Ensure the experiences, priorities and needs of people living with retinal conditions help shape research, innovation, policy and healthcare.
High-Quality, Evidence-Based Research
Partner with RI to build on a strong commitment to scientifically rigorous, peer-reviewed research that generates robust evidence, informs decision-making and contributes to meaningful impact for people living with retinal conditions.
Collaboration That Drives Change
Bring together patients, researchers, healthcare professionals, industry and policymakers to accelerate progress, improve access to innovation and create lasting change for the retinal community.
Our Commitment to Responsible Partnership
RI values partnerships built on shared objectives, transparency, integrity and respect for the independence of the patient community.
We welcome collaboration with organisations that share our commitment to advancing retinal research, supporting meaningful patient involvement and improving outcomes for people affected by retinal conditions.
Partnerships should align with RI’s mission and uphold the interests of the people and communities we represent.
Explore More of What We Do
Interested in Working with Us?
We welcome opportunities to connect with organisations and individuals who share our commitment to advancing retinal research, supporting patient communities and improving outcomes for people affected by retinal conditions.
Contact Retina International to explore opportunities for collaboration.
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