Supporting research and innovation
RI has 43 active members made up of patient-led voluntary groups, charities and foundations & all with the common goal of finding cures and treatments for retinal dystrophies by supporting research and innovation.
A global community working to advance retinal health
Retina International (RI) brings together a global network of patient-led organisations, charities and foundations committed to improving the lives of people affected by retinal conditions. Our members represent individuals and families across different countries and communities, united by a shared ambition: to advance research, improve access to care and ensure that the voices of people living with retinal conditions help shape the future.
Through collaboration, knowledge-sharing and collective advocacy, our members help strengthen the global retina community and drive progress towards better treatments, care and support.
What Our Members Do
Support people and families
Member organisations provide information, guidance and opportunities for people affected by retinal conditions to connect with others who understand their experiences. Many also help individuals and families navigate diagnosis, daily life and changes in vision.
Raise awareness and improve understanding
Through education, outreach and awareness activities, members help increase understanding of retinal conditions and the challenges faced by people living with them.
Advance research and innovation
Members help bring the patient perspective into research by highlighting community priorities, encouraging participation and supporting approaches that reflect the real-life needs of people affected by retinal conditions.
Advocate for better care and access
By engaging with healthcare systems, policymakers and other stakeholders, member organisations work to improve recognition of retinal conditions and promote equitable access to appropriate care, support and emerging treatments.
-
close