Retina International

Retina International (RI) is a global umbrella organisation for patient-led charities and foundations who support research into rare, genetically inherited and age-related forms of retinal disease. Retina International is a registered charity in Ireland.

These rare diseases cause progressive degeneration of the retina – a thin layer of tissue at the back of the eye that is essential for vision.

Retina International launches results of new study!

Retina International are proud to launch the results of our recent cost of illness study on the impact of age-related macular degeneration (AMD). This one-of-a-kind global study provides an insight into the disease burden of AMD in three different countries that represent a range of different costs and experience. The data highlights critical gaps in support and care for those living with late-stage AMD as well as their caregivers.

Click here to learn about the impact of AMD.

Our Toolkits


This AMD Toolkit is an educational resource for Age Related Macular Degenerations.

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Know Your Code is a genetic testing advocacy initiative by Retina International.

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This IRD Toolkit is an educational resource for Inherited Retinal Degenerative Diseases.

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Click on each icon to view toolkit information, or click here to view them in our education section.



Retina Action is a global coalition committed to developing policy actions for the ageing retina.

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This DED Toolkit is an educational resource for Diabetes-Related Eye Diseases.

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Our Members

RI has 43 active members made up of patient-led voluntary groups, charities and foundations & all with the common goal of finding cures and treatments for retinal dystrophies by supporting research and innovation.

Learn more about joining our member organisation
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