Retina International (RI) is a global umbrella organisation for patient-led charities and foundations who support research into rare, genetically inherited and age-related forms of retinal disease. Retina International is a registered charity in Ireland.
These rare diseases cause progressive degeneration of the retina – a thin layer of tissue at the back of the eye that is essential for vision.
Retina International are proud to launch the results of our recentĀ cost of illness study on the impact of age-related macular degeneration (AMD). This one-of-a-kind global study provides an insight into the disease burden of AMD in three different countries that represent a range of different costs and experience. The data highlights critical gaps in support and care for those living with late-stage AMD as well as their caregivers.