Act4RED: Stop The Loss
Stop the loss of vision.
Act4RED is a joint initiative of Retina International, ERN-EYE, the Foundation Fighting Blindness, and the Ocular Diseases Forum, bringing together patients, clinicians, and researchers to improve diagnosis, care, and innovation for people living with Rare Eye Disease (RED).
Our shared goal
We are calling to Stop the Loss of Vision by improving outcomes for people affected by inherited retinal degenerations, anterior segment disorders, neuro-ophthalmic conditions, and paediatric rare eye diseases.
We aim to raise awareness and visibility of these conditions, which are often underdiagnosed and underfunded, and to highlight the high unmet needs of patients to health ministries, research bodies, and regulators.
We advocate for coordinated policy action at EU and global levels, and to promote research, innovation and investment in retinal health.
Through our actions we aim to, improve access to specialist care, rehabilitation, and emerge therapies, and ultimately enhance the quality of life for individuals and families affected by retinal degenerations.
Act4RED is a joint initiative of Retina International, ERN-EYE, the Foundation Fighting Blindness and the Ocular Diseases Forum
We unite key stakeholders in driving coordinated, patient-centered, and evidence-based action on rare eye diseases (RED).
Why Act4RED Matters
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