28 February 2022 Rare Disease Day: Highlighting the Importance of Receiving a Genetic Diagnosis for IRDs
08 February 2022 The Added Value of Patient Engagement in Early Dialogue at EMA: Scientific Advice as a Case Study
20 January 2022 Foundation Fighting Blindness Promotes Jason Menzo to President and Chief Operating Officer
20 December 2021 UN Resolution Adopted: Addressing the Challenges of Persons Living with a Rare Disease