Save our Sight (SOS): a collective call-to-action for enhanced retinal care across health systems in high income countries
Theme: Patient Experience Data
Fundamentals of the Diagnosis and Management of Inherited Retinal Diseases
Real-World Safety and Effectiveness of Voretigene Neparvovec: Results up to 2 Years from the Prospective, Registry-Based PERCEIVE Study
Lived experiences of genetic diagnosis for rare disease patients: a qualitative interview study
Expert Consensus on Geographic Atrophy in the EU: A Call for Urgent Policy Action
Therapies for Inherited Retinal Dystrophies: What is Enough?
The burden of X-linked retinitis pigmentosa (XLRP) on patientexperience and patient-reported outcomes (PROs): findingsfrom the EXPLORE XLRP-2 study
The Impacts of Caregiving for Patients with X-Linked Retinitis Pigmentosa (XLRP): Findings from the EXPLORE XLRP-2 Study
Awareness of Myopia Associated Complications and Perspectives on Myopia Management Among Parents of Children with Myopia in France and the UK
The socioeconomic impact of inherited retinal dystrophies (IRDs) in Belgium: A cost-of-illness study
Post-Visual Diagnosis Distress: The Weight of Threatened Sight
-
close