Practical resources
Clinical trials play an important role in advancing research and developing potential new treatments for retinal conditions. Finding and understanding relevant trials can feel overwhelming, whether you are living with a retinal condition, supporting a family member, working in research or advocating for the retina community.
This page brings together trusted resources to help you explore ongoing clinical trials, discover registries for inherited retinal diseases (IRDs) and learn more about retinal research.
What are Clinical Trials?
Understanding Clinical Trials
Clinical trials are research studies that investigate potential treatments, assess their safety and effectiveness, or improve understanding of a condition. For people affected by retinal conditions, trials may explore new therapies, ways to slow vision loss or approaches to preserving sight.
Finding Relevant Trials
Before exploring or joining a clinical trial, consider asking your healthcare professional or research team:
- Is the trial relevant to my condition or genetic diagnosis?
- What is the purpose of the study, and what stage is it at?
- Who can take part, and what are the eligibility criteria?
- What are the possible benefits, risks and commitments?
- Where is the trial taking place, and will travel be required?
- What costs, support or follow-up care may be involved?
Participation in clinical research is voluntary. Discuss any potential trial with an appropriate healthcare professional or research team before making a decision.
Clinical Trial Trackers
Foundation Fighting Blindness
Explore the clinical trial pipeline for inherited retinal diseases and learn about potential treatments in development.
Retina Australia
Find clinical trial information relevant to inherited retinal diseases, with a focus on resources for the Australian community.
ERN-EYE
Explore clinical trial information through the European Reference Network dedicated to rare eye diseases.
EU Clinical Trials Register
Search for clinical trial information in the European Union and explore studies by relevant criteria.
EMA Clinical Trials Information System (CTIS)
Access information about clinical trials of medicines conducted in the European Union and the European Economic Area.
ClinicalTrials.gov
Search an international database of clinical studies, including trials investigating treatments for inherited retinal diseases and other eye conditions.
Registries for Inherited Retinal Diseases
Registries collect information to support research, improve understanding of conditions and, in some cases, help connect people with research opportunities.
FFB My Retina Tracker Program
Learn about the My Retina Tracker Registry, which supports research into inherited retinal diseases by collecting information from participating individuals.
REDgistry
Explore REDgistry, a resource focused on rare eye diseases and supporting research into these conditions.
Continue Your Learning
Explore more ways Retina International supports education, collaboration, and patient empowerment.
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