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Collaborative Publications

Publications

Explore research publications from collaborative projects and partnerships that contribute to progress in retinal health and patient-centred research.

2026

Cost of Illness

A cost of illness model to estimate the annual societal costs of X-linked retinitis pigmentosa (XLRP) in the United Kingdom (UK)

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Cost of Illness

The socioeconomic impact of inherited retinal dystrophies (IRDs) in Belgium: A cost-of-illness study

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Patient Experience Data (PED)

Post-Visual Diagnosis Distress: The Weight of Threatened Sight

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2025

PED

Awareness of Myopia Associated Complications and Perspectives on Myopia Management Among Parents of Children with Myopia in France and the UK

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PED

The Impacts of Caregiving for Patients with X-Linked Retinitis Pigmentosa (XLRP): Findings from the EXPLORE XLRP-2 Study

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PED

The burden of X-linked retinitis pigmentosa (XLRP) on patientexperience and patient-reported outcomes (PROs): findingsfrom the EXPLORE XLRP-2 study

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2024

IRDs

Therapies for Inherited Retinal Dystrophies: What is Enough?

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Geographic Atrophy / Policy

Expert Consensus on Geographic Atrophy in the EU: A Call for Urgent Policy Action

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2020

Cost of Illness / IRD

IRDCOUNTS

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