Our Published Work

Cost of Illness Studies

Understanding the economic, social, and personal impact of retinal conditions.

Research includes:

• Direct healthcare costs
• Impact on employment and productivity
• Caregiver burden
• Quality of life
• Societal impact

Genetic Testing Research

Genetic diagnosis is transforming the understanding and management of inherited retinal diseases.

Our research explores:

• Access to genetic testing
• Patient experiences
• Diagnostic pathways
• Barriers and inequalities
• The role of genetic information in treatment development

Geographic Atrophy Research

Retina International works to better understand the experiences, priorities, and treatment expectations of people living with geographic atrophy.

Research focuses on:

• Disease burden
• Patient priorities
• Meaningful treatment outcomes
• Emerging therapies

Patient-Reported Outcomes

Understanding symptoms, challenges, treatment expectations, and outcomes that matter most to people living with retinal conditions.

Quality of Life Studies

Exploring how retinal conditions affect:

• Independence
• Wellbeing
• Education
• Employment
• Social participation

Caregiver Impact

Recognising the important role of caregivers and understanding the wider impact of retinal conditions on families.

Research explores:

• Caregiver responsibilities
• Emotional impact
• Time commitments
• Economic burden

Patient Preferences

Ensuring patient priorities inform:

• Research design
• Clinical trial outcomes
• Treatment development
• Healthcare decision-making