Retina International’s campaign, Patient Voices: Deciding Our Futures, is an initiative dedicated to protecting and promoting the patient voice in health innovation.
For decades, the retinal community has worked tirelessly to secure a place for patients at the decision-making table; shaping research priorities, influencing policy, and ensuring that innovation reflects the realities of those it seeks to serve.
However, emerging legislative changes in the EU and beyond now threaten to reduce or even remove the formal inclusion of patient representatives from health innovation frameworks. At Retina International, we believe that silencing the patient voice would be a serious setback, not just for our community, but for innovation itself.
Our campaign stands firmly in solidarity with the joint EURORDIS and European Patients’ Forum initiative Keep Patients Voting, which calls on policymakers to safeguard the participation of patient advocates in decision-making processes across health and research.
For Patient Voices: Deciding Our Futures, we are proud to feature our CEO, Avril Daly:
Image description:
A graphic titled “Patient Voices: Deciding Our Futures.” On the left, a large quote reads: “The patient voice has proven its value again and again. When patients contribute, research becomes more focused on real needs. It delivers tangible benefits to the people it’s meant to serve.” Beneath the quote is the attribution: Avril Daly, CEO, Retina International. On the right is a black-and-white portrait of Avril Daly, smiling slightly and wearing a dark blazer. At the bottom is a yellow banner with the hashtag #KeepPatientsVoting. The Retina International logo appears in the top right corner.
For decades, our global retinal community has fought to secure a rightful place for patients at the decision-making table: shaping research priorities, informing policy, and ensuring that innovation reflects real-world needs.
But emerging legislative changes in the EU and beyond now threaten to weaken, or even remove, formal patient representation in key health and research frameworks.
Avril puts it clearly:
“The patient voice has proven its value again and again. When patients contribute to decisions, research becomes more focused on real needs, and innovation delivers tangible benefits to the people it’s meant to serve.”
– Avril Daly, CEO, Retina International.
Retina International proudly stands with the EURORDIS and European Patients’ Forum initiative #KeepPatientsVoting, calling on policymakers to safeguard patient participation across health and research.
Because when patients are included, innovation becomes stronger, more relevant, and more equitable.
Follow the campaign using #PatientVoices and #KeepPatientsVoting, and stay engaged as we amplify the voices that continue to shape the future of retinal research and care.
