Retina South Africa is a patient-led advocacy and support group and is the only registered NPO representing retinal patients in South Africa.
Our major focus is:
- Advocacy to improve the patient journey for South Africans affected by Age related, Diabetes related and inherited retinal conditions.
- Support of the Retinal Degeneration Research project at the University of Cape Town to find the genetic mutations in South African families
- Facilitation of genetic testing to identify those patients who will benefit from clinical trials and imminent therapy
- Public Awareness of retinal degeneration
- Patient counselling and support including education, referral and intervention
- Collaboration with local and international agencies and researchers
- Fundraising to support this work
We are founding members of Retina International with headquarters in Ireland.
Membership is open to all patients, family members and persons who wish to support our quest to find treatments for retinal blinding conditions.
