Germany – PRO RETINA Deutschland e.V.

PRO RETINA Deutschland e.V. is a national self-help organization for people with genetic retina diseases.

It was established in 1977 as the German Retinitis Pigmentosa Association by those affected and their families with the aim of helping themselves.

Today PRO RETINA has about 6,000 members throughout Germany. Each member can join one of the approximately 50 regional groups. The Managing Board and all active members are volunteers.

  • PRO RETINA offers support for
  • Retinitis Pigmentosa (RP)
  • Macula Degeneration (MD)
  • Age-related Macula Degeneration (AMD)
  • Usher Syndrome
  • and many other rare diseases of the retina.

PRO RETINA advises those effected and their relatives on medical and social issues and which aids to choose. It promotes research and represents patients’ interests in research and medicine. There is a scientific and medical council for this work.

We want to encourage everyone who may face sight deterioration or blindness due to retina impairment to lead a self-determined life through prevention, therapy and to overcome problems jointly.


PRO RETINA Deutschland e.V.

Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen

Kaiserstr. 1c

D-53113 Bonn


T +49(0)228! 227 217-0

F +49 (0)228) 227 217-29

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