To all those affected by either the IQCB1 gene (aka NPHP5 and LCA 17) or the CRB1 gene (aka LCA 8):
Foundation Fighting Blindness and Sofia Sees Hope are holding two gene specific workshops in February 2021. The IQCB1 workshop is on Monday 8th February 2021 and the CRB1 workshop is on Tuesday 9th February 2021. These workshops are for the scientific community engaged in research for these genes and in the development of treatments. Those affected with IQCB1 or CRB1 inherited retinal disease are cordially invited to attend the Zoom meetings after the workshops, where the outcomes of the workshops will be shared. The IQCB1 meeting is on Thursday 18th February 2021 and the CRB1 meeting is on Friday 19th February 2021. If you would like to attend one or both of these meetings, please register beforehand using this link:
https://us02web.zoom.us/webinar/register/WN_f7_kpPNmQTGlh9nU8w1KwQ
Foundation Fighting Blindness and Sofia Sees Hope are also asking for those affected by IQCB1 or CRB1 to kindly complete an anonymous survey ahead of the workshops. The survey responses will be analysed for use at the workshops. Here are the links to the surveys.
For the IQCB1 survey:
https://www.surveymonkey.com/r/IQCB1NPHP5
For the CRB1 survey:
https://www.surveymonkey.com/r/CRB12021.