Education Hub


There is an increasing demand for patient involvement in medical innovation at research, industry, and policy levels. Retina International (RI) has observed an unmet need amongst its community, where the knowledge and skills to effectively engage in an advisory or advocacy capacity are not developed.

This inspired the creation of the Retina International Education Hub. Developed by past RI Education and Engagement Manager Fiona Waters with the support of subject matter experts and patients, this six-month training and skills development programme focuses on education, participation, and innovation. The course uses a blended learning approach consisting of independent e-learning, interactive virtual discussion seminars and skills development workshops.

We’re delighted to announce that are now recruiting for the third annual Education Hub. 



This course will take place over six months; from October 20th until March 15th 2024.



  • Build knowledge & skills within the retina patient community that enables informed participation in research and innovation.
  • Foster capacity for patient-active advocacy in patient community.
  • Develop a database of confident patient leaders for referral to advocacy and advisory ambassador roles on behalf of Retina International.
  • Provide personal development and networking opportunities for the retinal patient community.
  • Develop novel links and opportunities with learned societies and other bodies in our field through an expanded network.
  • Create a robust and comprehensive patient education model to support local capacity building amongst Retina International member organisations



The below is anonymous feedback received from the participants of the 2021 Education Hub.

  • “I really enjoyed learning about other countries’ genetic testing processes, and comparing and finding gaps where we may be able to help.”
  • “I love how we went into the history of ethics, and then discussed different scenarios. It was fascinating to hear other people’s opinions. I love the open discussion setting.”
  • “The wide range of benefits and options that were discussed about different registries was fascinating. I am very intrigued to find out more about the LHON repository to see how we can adopt some of the same principles.”


RI Education Hub at ARVO

RI had the honour of presenting the Education Hub at the Association for Research in Vision and Ophthalmology (ARVO) Annual Meeting in 2022. Click the link below to download the poster.

Click here to download the RI Education Hub poster.


Application Information

The following application pack includes more information on the 2023 Education Hub Programme and how to apply.

Click here to download the application pack.

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