I Represent a Stakeholder Organisation

Working Together for the Retinal Community

Working together to advance retinal research, amplify patient voices and improve outcomes for people living with retinal conditions.

Retina International (RI) brings together a global network of patient-led organisations, researchers, healthcare professionals and like-minded organisations committed to improving the lives of people affected by retinal conditions.

Through collaboration, shared knowledge and collective advocacy, we strengthen the voice of the retinal community, support research and innovation, and work towards a future where everyone affected by retinal conditions has access to the care, support and opportunities they need.

Partner With Us

We believe progress happens when expertise, evidence and lived experience come together. Through collaboration across research, healthcare, education and policy, we work to ensure that the needs and priorities of people living with retinal conditions are recognised and reflected in decisions that affect their lives.

Whether you represent a research institution, healthcare organisation, professional society, public body, regulator or another patient organisation, there are opportunities to work with RI towards shared goals.

Partnerships

Why Collaborate with Retina International?

A Global Patient Perspective

RI connects stakeholders with a global network of patient-led organisations representing people living with retinal conditions and their families. We help bring patient perspectives into international discussions, ensuring that lived experience contributes to research, healthcare and policy development.

Evidence That Informs Decisions

RI supports research and evidence generation to improve understanding of the medical, social and economic impact of retinal conditions. Our work helps highlight unmet needs, inform advocacy and contribute to discussions about healthcare, research priorities and access to innovation.

Meaningful Patient Involvement

People living with retinal conditions have valuable expertise to contribute to research and healthcare decisions. RI promotes meaningful patient involvement so that lived experience informs research priorities, patient-relevant outcomes, service development and policy.

Collaboration Across Sectors

We connect patient organisations, researchers, healthcare professionals, policymakers and other stakeholders to share knowledge, identify common priorities and work towards improvements in retinal health.

Patient Involvement

Putting Lived Experience at the Centre

Meaningful patient involvement is essential to research and healthcare that reflect the needs of the people they serve. RI works to amplify the voices of people living with retinal conditions and encourage their involvement throughout the research and healthcare process.
This includes opportunities to
Identify research priorities based on patient needs and experiences.
Inform the selection of outcomes that matter to patients.
Improve understanding of the impact of retinal conditions on everyday life
Contribute patient perspectives to research and policy discussions
Strengthen communication, education and awareness
Support patient-led advocacy through shared evidence and experiences
Partnerships

Research, Evidence and Knowledge Exchange

RI recognises the importance of robust evidence in advancing retinal research, informing healthcare decisions and supporting effective advocacy.

Our research and initiatives explore the experiences of people living with retinal conditions, including quality of life, socioeconomic impact, unmet needs and access to care and innovation.

We welcome opportunities to exchange knowledge and explore collaborative initiatives that align with our mission and contribute to better outcomes for the retinal community.

Our Approach to Collaboration

RI seeks to build relationships based on shared objectives, transparency, integrity and respect for the independence of the patient community.

We welcome collaboration with organisations that share our commitment to advancing retinal research, strengthening patient involvement and improving the lives of people affected by retinal conditions.

All collaborations should align with RI’s mission and values, with the interests of people living with retinal conditions at their centre.

Let's Work Together

Are you a researcher, healthcare professional, policymaker, academic institution, patient organisation or representative of another stakeholder group interested in collaborating with Retina International?

We welcome conversations about shared priorities, opportunities to exchange expertise and initiatives that can make a meaningful difference to the retinal community.

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