World Retina Day
World Retina Day is an annual global awareness day held on the last Sunday of September, dedicated to raising awareness of retinal diseases, promoting early diagnosis, advancing research, and advocating for equitable access to treatments and care. It brings together patients, healthcare professionals, researchers, and organisations worldwide to champion vision health and improve the lives of people affected by retinal conditions.
Our shared goal
On World Retina Day, we celebrate the work of our members around the world, amplifying their activities, raising awareness of retinal health and highlighting the lived experiences of people affected by retinal conditions. In 2026, we are placed a particular focus on mental health and emotional wellbeing, recognising that the impact of retinal disease extends far beyond vision.
Together, we want to build a future where every person affected by retinal disease is heard, supported and empowered, with their mental health and wellbeing recognised as essential components of care.
A Global Challenge
Patient-Led Research
Through our ongoing patient-led research, we are working to better understand the emotional and psychological impact of retinal disease.
Building Evidence Base
We are working to build an evidence base that can inform research, clinical practice and patient support.
Lived Experience
We believe that listening to lived experience is essential to ensuring that care reflects the needs of the whole person, from diagnosis throughout the disease journey.
Why World Retina Day Matters
Raise public awareness
Increase understanding of rare diseases, their symptoms, challenges and impact on individuals and families.
Promote equitable access to healthcare
Advocate for fair access to quality healthcare, specialist services, diagnosis and treatment for everyone affected by a rare disease.
Encourage early and accurate diagnosis
Highlight the importance of timely diagnosis to help people access appropriate care, treatment and support.
Support research and innovation
Encourage investment in scientific research, the development of new treatments and the search for potential cures.
Improve access to treatments and therapies
Promote the availability, accessibility and affordability of effective medicines and therapies for rare diseases.
Empower patients and their families
Give people living with rare diseases and their families a stronger voice in healthcare decisions, research and policymaking.
Influence policies and decision-making
Encourage governments, healthcare organisations and policymakers to recognise rare diseases as a public health priority and develop supportive policies.
Strengthen global collaboration
Bring together patient organisations, researchers, healthcare professionals, policymakers and communities to share knowledge and work towards common goals.
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