Open Letter presented to Stella Kyriakides, European Commissioner for Health, and Food Safety
An Open Letter, outlining key strategic policy recommendations for rare diseases over the next five years was presented to the European Commissioner for Health and Food Safety, Stella Kyrakides by Avril Daly CEO of Retina International and EURORDIS President, Virginie Bros-Facer who is CEO of EURORDIS (Rare Disease Europe} and Valentina Bottarelli who is Public Affairs Director at EURORDIS during a meeting at the European Commission in Brussels on July 23rd.
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