At the request of members who represent the Usher community, Retina International has established the Retina International Usher Network – RI USH. This is a network of patient experts in Usher Syndrome who are affiliated to our national membership organistions. The network will act as a platform to support advocacy campaigns for the Usher community and to address the demand for up-to-date and reliable information on clinical trials and emerging therapies to all individuals with Usher syndrome, their families and associated medical professionals.
In a first step, the network has been seeking volunteer patient experts ready to take an active part in the network and to form a committee.
