This week, Avril is joined by Brian Mansfield, Chief Scientific Officer and Executive Vice President of Research with Foundation Fighting Blindness to discuss the MyRetina tracker registry; a research database of people and families affected by rare inherited retinal degenerative diseases (IRDs).
Brian explains the importance of knowing your genetic code and how the MyRetina tracker works to help people understand the condition that they live with. In this way, it helps to accelerate the discovery of treatments and cures for IRDs by sharing de-identified information within the research and clinical communities to better understand the genes causing the disease, how the disease progresses, how it impacts people’s lives and how you can engage with the Registry!
If you wish to enquire further about the registry, please contact: coordinator@MyRetinaTracker.org
Further information on Genetic Testing is available on the FFB website:
Open Access Genetic Testing Program
General Genetic Testing Information
Listen to the podcast here:
In-Focus Episode 12: Brian Mansfield PhD
