In Focus Series 2

In the second series of the In Focus Podcast, a member of Retina International will speak to invited guests ranging from researchers to influencers. They will discuss current global issues that impact the visually impaired community and what’s being done to improve inclusivity and wellbeing for all. Through these discussions, we hope to shed light on topical issues.

 

Episode 5: Professor David Keegan




For this episode of the In Focus podcast, in honor of Diabetes Awareness Month, RI CEO Avril Daly speaks with consultant ophthalmologist Professor David Keegan. Professor Keegan is a graduate of the Royal College of Surgeons in Ireland and now specialises in medical and surgical retinal disease including paediatric retinal surgery and diabetic retinal disease. He runs the Mater Multidisciplinary Inherited Retinal Degeneration and Diabetic Retinal Treatment Services along with the Retinal Clinical Trials Unit. He is the lead for Ireland’s collaborative application to the European Reference Network for Rare Eye Disease (ERN-EYE) and is also a member of the Retina International Scientific Medical Advisory Board (SMAB).

In this episode, Avril and Professor Keegan discuss how diabetes affects the eyes and why early detection is so important in preventing sight loss. Keegan tells us how screening for diabetic eye diseases works, and what preventative measures and treatments are available to preserve sight. They also discuss the theme for this year’s World Diabetes Day, “Access to Diabetes Care: if not now, when?” Unfortunately, in many parts of the world, people with diabetes don’t have access to the education and screening programs that are vital to their eye health.

Professor Keegan also talks about the stigma around diabetes, and why it’s important to be compassionate and understanding towards people with this lifelong condition. Diabetes can affect people of all ages, all around the globe in many different ways. With over 500 million people in the world living with diabetes today, it is vital that they receive the ongoing care and support needed to manage their condition, avoid complications, and maintain their vision.

If you’d like to learn more about this year’s World Diabetes Day, visit https://worlddiabetesday.org/.

For more information on Diabetes-related Eye Diseases, please visit the DED toolkit (link) on our website: https://ded.retinaint.org/

Episode 4: Claudette Medefindt and Karen Denton




In this episode of the In Focus podcast, RI Communications Officer Dana Hufe speaks with Claudette Medefindt and Karen Denton from Retina South Africa. Claudette Medefindt is the Head of Science and Patient Services for Retina South Africa and has been a patient advocate for the past 40 years. Karen Denton heads Advocacy and Education there, and is a worldwide expert on AMD and diabetes.

They discuss the impacts of the Covid-19 pandemic on the retina community—on eye health, daily living, and the progress of retinal research. They also offer advice for adjusting to the challenges of the pandemic, through living a healthy lifestyle and utilizing technology for assistance.

For more information on the impacts of Covid-19 on the retina community, you can visit our World Retina Day press release.

Episode 3: Mary Mammoliti




In this episode, Retina International Communications Officer Dana Hufe talks with legally blind culinary expert Mary Mammoliti. Mary is a disability advocate and the owner of the blog and Instagram account Kitchen Confession. She also has a food segment on a biweekly radio show and has made TV appearances on The Marilyn Denis show and Breakfast Television among others. Mary hosts two podcasts and has just begun the first season of her television show Dish with Mary.

In this episode, Mary talks about how her diagnosis of retinitis pigmentosa led her to leave her career in finance and become a chef. Mary says that she is now the happiest she has ever been, even with less sight. She tells us about her interesting life, cooking with crickets, and how she navigates the kitchen using all her senses. She also discusses the importance of inclusivity and the presence of people with disabilities in the media.

You can learn more about Mary from her blog and  Instagram account, both titled Kitchen Confession. You can also watch her show Dish with Mary on Accessible Media Inc.

Episode 2: Martin Sigsworth




In the second episode of series 2 of the In Focus podcast, RI’s Fiona Waters speaks with Martin Sigsworth about career development for people with low vision.

Martin Sigsworth is the Senior Employment manager at Thomas Pocklington Trust. He is passionate about enabling blind and partially sighted people to achieve their employment goals and feels with the right workplace adjustments any career is possible. A blind person himself, he has worked in a number of sectors from media to recruitment and uses all of these experiences to design and implement employability programmes which support blind and partially sighted people into work.

In this episode, Martin talks about his work with Thomas Pocklington Trust, and the resources they provide for visually impaired people in their career search, including CV templates, mock interviews, and much more. He also discusses the importance of resilience and seeing a visual impairment as a benefit to any organisation. The guiding advice laid out in this interview is an asset to any job seeker looking to begin or further develop their career.

Episode 1: Laura Whelan




Fiona Waters begins series 2 of Retina International’s In Focus podcast by welcoming Laura Whelan.

Laura Whelan is a third year PhD candidate in Prof. Jane Farrar’s lab in Trinity College Dublin. Laura’s work is carried out as part of the Target 5000 study, which aims to provide clinical and genotyping services for people living in Ireland with an inherited retinal disease. Laura has a particular interest in non-coding DNA variants and their role in these diseases. Laura is also interested in making science more open to the public and can be found on Twitter and Instagram @ phdwithlaura, where she shares her work and life as a PhD student.

In this week’s episode, Laura talks about her research and who and what motivated it. She also discusses patient engagement and why it’s so valuable for researchers to involve patients in their process. In addition, Laura discusses science communication, how she became interested in it, and why she chooses to share her research with the world. You can learn more about Laura and her life as PhD student by visiting her social media pages.

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