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Welcome to
Know Your Code
Know Your Code is a genetic testing advocacy initiative by Retina International, and is part of a call to action for the Inherited Retinal Degeneration (IRD) community to advocate for affordable and accessible genetic testing to accurately diagnose IRDs.
This portal is also home to the IRDCOUNTS suite of IRD Cost-of-Illness studies carried out in the UK, Ireland, US, and Canada.
About Know Your Code
Know Your Code is an all-encompassing platform for information on genetic testing, providing a bespoke, go-to resource for patients, clinicians, researchers, and health policy specialists alike.
On this portal, you can learn more about:
- The genetics and inheritance of IRDs
- Genetic testing – how it is carried out, and why you should “Know Your Code”
- The process of genetic counselling, and how to get the support you need
- FAQs to help you prepare for your genetic test
- The genetic testing landscape around the globe
- Our pioneering Cost of Illness studies, and their major findings
- Advocating for affordable and accessible genetic testing
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