DED Toolkit

Welcome to

RI’s DED Toolkit

An educational toolkit for a multi-stakeholder audience related to Diabetes-related Eye Diseases.

DEDs are a collection of eye conditions that people living with diabetes are vulnerable to, including  diabetes-related retinopathy and diabetes-related macular edema, diabetes-related glaucoma, diabetes-related cataract, diabetes-related keratopathy, diabetes-related dry eye syndrome, and diabetes-related uveitis.

About this Toolkit

Over 400 million people around the world are living with diabetes, of these, 145 million have some form of diabetes-related retinopathy, and of these, 45 million people are at risk of losing their sight due to diabetes-related retinopathy. This is preventable. For individuals and families who have been diagnosed with any form of Diabetes, access to relevant, detailed and clearly understandable information is essential.

This site aims to provide timely, relevant and accurate information to patients and their families and professionals (Eye Care Professionals, Advocates, etc.) on the causes, symptoms, diagnosis and available treatment options for diabetes- related eye diseases (DEDs).

It has also been developed to provide professionals with clear and concise information on DEDs, in particular, to provide them with the relevant information to advocate for education regarding the impact of diabetes on eye health, the implementation of screening programmes, as well as improved services for affected individuals, and funding of relevant research to help support development and reimbursement of innovative therapies.

Retina Action

A Global Partnership for a Lifetime of Vision

Retina Action is a global coalition of vision and ageing groups representing the voice of people affected by vision loss and the aging population. Out DED and AMD Toolkits make up a part of this coalitions capacity building initiatives.

Click here to learn more about Retina Action

Retina Action  calls upon governments to:

  1. Develop, and where developed, implement screening programs for Age-related Macular Degeneration and Diabetes-related Retinopathy.
  2. Sustain and prioritise screening programs for Age-related Macular Degeneration and Diabetes-related Retinopathy during times of crisis;
  3. Improve awareness on the issues of digital poverty in the development of remote screening and eye healthcare programs;
  4. Prioritise the vaccination of the already vulnerable vision loss community against COVID-19; and
  5. Promote the inclusion and wellbeing of the ageing vision loss community.

 

Members of Retina Action:

Retina International 
Prevent Blindness USA 
International Federation on Aging Australia
Retina France
ProRetina Germany 
Canadian Council of the Blind  
Blind & Low Vision New Zealand 
European Council of Optometry and Optics 
European Alliance for Personalised Medicine 

About Retina International

Retina International is a global umbrella organisation for patient-led charities and foundations who support research into rare, genetically inherited and age-related retinal conditions.

RI believes that education leading to participation is a key driver in successful innovation.

Retina International strives to – Educate its community who in turn will be the educators of their peers, of all relevant stakeholders and decision makers and will utilise the understanding to Participate as informed actors in development of research, through the provision of advice, and perspective to all stakeholders and decision makers allowing the community to better Innovate to support and promote research for unmet need.

To learn more, visit our website: retina-international.org

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