Last week, Retina International had the honour of welcoming many of our community to the Retina International World Congress in Reykjavik, Iceland. We were delighted to use this opportunity to launch RI’s Universal Policy Indicators for Access to and Delivery of Genetic Diagnostic Services for IRDs, which were developed with the RI Genetic Testing Patient Taskforce.
A policy indicator is a measure that shows the status of developments towards achieving a policy action goal. These policy indicators are designed to provide a framework for consistent and unified advocacy work for genetic diagnoses for IRDs at global and national levels, and enable cross-sector collaboration with clinical and research stakeholders, as well as other disease groups with similar needs.
A report of the taskforce findings is available for download on the Know Your Code website in both Word Doc and PDF formats. They were also presented by RI Education and Engagement Manager Fiona Waters at the RI Global Challenges session at the World Congress. Click here to download that PowerPoint presentation.
We invite you to disseminate these materials amongst your own networks, where relevant. We would like to extend a sincere thank you to our Genetic Testing Taskforce members, for your invaluable insights and contributions to this initiative.
If you have any feedback or questions, please contact Fiona.waters@retina-international.org.