EDUCATE: This is the Engagement and Outreach Pillar

RI has had much success in networking stakeholders together to share learnings and promote a holistic view of the community and in turn co-create initiatives to achieve shared objectives.

With the acceleration of research initiatives from concept to delivery in the retina space and the dynamic nature of regulation, particularly in the orphan therapy space, it is critical that patient organisations and those they represent as well as key stakeholders are informed in order to influence decision making.

With the need for patient participation increasing, it is a strategic objective of RI to ensure that members are not only represented in all areas of policy development that concerns them and the communities they serve, but they are educated with the most up to date information to allow them make the most valuable contribution on behalf of all patients affected by retinal disease.

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